The Children's Tumour Foundation of Australia (CTF) is the leading charity supporting sufferers of Neurofibromatosis (NF) in Australia.
A diagnosis of NF presents many challenges, but also barriers in accessing the best care and support from childhood right through to adulthood. In addition to building meaningful community connections and funding promising research, we provide practical support for those impacted and their families at every stage of their journey.
WE BELIEVE THAT TUMOURS SHOULD NEVER BE A PERSON'S NORMAL
The Children's Tumour Foundation of Australia was established in 1985 as the Neurofibromatosis Association of Australia with the purpose of providing support amongst a group of families impacted by NF. Over the next 20 years the organisation remained relatively small and relied on the efforts of a few committed families and a single employee who managed memberships and provided information to those impacted by NF.
In response to the increasing need and demand to connect and support NF families and individuals around Australia, the organisation was rebranded as the Children's Tumour Foundation in 2010 and has grown to a team that provides national support and presence in three states.
WHAT WE DO
Beyond the need for research, furthering the education of NF within schools, amongst GPs and even government, we raise much needed awareness and funds to help fill critical gaps in hospitals where clinical services for children and adults are in short supply or under-recognised.
Our goal is to improve knowledge and understanding of NF, but access to support services is critical if we are to improve the outlook for individuals and families impacted by the condition.