Dialog Box

OUR NF HEROES

MEET OUR NF HEROES

People with NF are borN Fighters. They face a life of uncertainty and anxiety, forced to battle tumours that can cause significant health issues including blindness, persistent pain, deafness, bone abnormalities, seizures, disfigurement and developmental delays. And whilst every person's experience is different, they all have one thing in common - THEY ARE ALL BRAVE. 

You can read their stories here.

MACY

According to Macy’s family, “superheroes don’t always wear capes, but this one truly deserves one”.

READ MACY'S STORY HERE

JESSE

Jesse is a big sports fan and dreams of becoming Australia's next big athlete, but complications with his NF have forced him to first overcome some major challenges, including a bone abnormality and amputations of his leg.

READ JESSE'S STORY HERE

EDWARD

Primary school was an incredibly lonely experience for Edward as as result of his NF. He didn’t have friends and was bullied mercilessly. "No one liked me. I couldn’t play sport at lunchtime, so I wasn’t welcome. I felt like I didn’t seem to fit in anywhere".

READ EDWARD'S STORY HERE

HANNAH

“I count myself one of the lucky ones. I may have NF, but that does not stop me from aiming high or achieving what I want out of life”.

READ HANNAH'S STORY HERE

CARYS

At 9 years of age Carys was diagnosed with a brain tumour after having multiple seizures and one year later, she was tested for NF2 after a tumour was discovered growing off her spine. Now 12, she is back at school and doing amazingly well.

READ CARYS' STORY HERE

MAX

It started with a cataract being removed from one of his eyes and a trip to the podiatrist to find out what could be done for a persistent limp that was getting progressively worse. The podiatrist was more than concerned and instructed Max's Mum to see a neurologist urgently as he believed the issues with his foot was a symptom of something larger.

READ MAX'S STORY HERE

JACK

"As a family, we are still grappling with Jack’s prognosis of NF1, with the greatest challenge being the unknown that lies ahead. Our little ‘Jack Jack’ is a funny little boy who’s cheeky, good humoured and extremely determined."

READ JACK'S STORY HERE
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